This paper, which is based on a pilot study in Africa, raises a host of ethical issues in relation to ‘applying’ anthropology and collaborative HIV/AIDS research. The author identi?es major issues related to the reproductive rights of women and the welfare of their infants in the context of HIV/AIDS research in Africa. The account considers the implications of apparently well-intentioned research that fails to safeguard the well being and dignity of the people involved. It exposes serious problems concerning the lack of informed consent in a medical research project on antenatal testing and mother-to-child-transmission of HIV. Furthermore, the study draws attention to the need for repeated screening for new ethical issues in ongoing medical (and other) research projects involving research participants whose rights might be overlooked in outdated ethics considerations. The paper cautions anthropologists (and other researchers) about being “co-opted” by those in authority, and serves as a reminder about the ‘do no harm’ dictum.
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Summer 2005
AIDS/Research|
May 26 2005
Rights and Wrongs: HIV/AIDS Research in Africa
Louise de la Gorgendiere
Louise de la Gorgendiere
1
Department of Sociology and Anthropology, Carleton University, Ottawa, ON, Canada
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Human Organization (2005) 64 (2): 166–178.
Citation
Louise de la Gorgendiere; Rights and Wrongs: HIV/AIDS Research in Africa. Human Organization 1 June 2005; 64 (2): 166–178. doi: https://doi.org/10.17730/humo.64.2.qywa96br4laj9k18
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