Today, as a result of self-advocacy, the advocacy of family members, shifts in policies and regulations, and advances in many fields (e.g., medicine, critical disability studies), individuals with intellectual and developmental disabilities (IDD) are continuing to pursue their rightful place in society as equal, powerful, and valuable members of the human community. Families, broadly defined, often play a critical role in these efforts (Dowling & Dolan, 2010; Manago, Davis, & Goar, 2017). Families serve as a source of support for all individuals, including individuals with IDD, across our lifespans, and it is important that researchers, practitioners, and policy makers understand the experiences of individuals with IDD and their families and explore how to best support families who provide support to children and adults with IDD (AAIDD and The Arc, 2014; Hewitt et al., 2013).

In 2015, AAIDD identified supporting families as one...

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