Abstract

A qualitative study involving 10 mothers who received a prenatal diagnosis of Down syndrome and chose to continue their pregnancy was presented. The time frame considered was diagnosis to delivery. We looked at how the diagnosis was presented, the decision to continue the pregnancy, and the mothers' experience with professionals from diagnosis to delivery. Mothers' suggestions to others facing the same challenges and to their health care providers were discussed as were the types of support given these mothers and what was or would have been most helpful to them. The importance of professionals reviewing their procedures and protocols for working with families facing similar circumstances was stressed.

This project was supported, in part, by Health Resources and Services Administration, the U.S. Department of Health and Human Services; Grant No. MCJ-259150 from the Maternal and Child Health Bureau; and Grant No. 90DD0357 from the Administration for Children and Families, Administration on Developmental Disabilities. No official endorsements of this research should be inferred.

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