Spina bifida is a congenital neural tube defect that affects the spine and spinal cord, as well as the brain in many cases, with life-long health-related consequences. In most cases, the term spina bifida refers to open myelomeningocele but includes a spectrum of dysraphic conditions. Early recognition and comprehensive care improve long-term health, well-being, and quality of life and decrease the use of emergency services and hospitalizations over the lifespan. Current evidence-based care guidelines are comprehensive, but they are not easily interpreted in busy primary care settings. The development of a periodicity schedule serves to simplify the current spina bifida guidelines into a document that is easy to use by all practitioners and families.
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Summer 2022
Research Article|
August 17 2022
Demystifying Spina Bifida Guidelines Using a Periodicity Schedule Available to Purchase
Jessica Y. Chaney, DNP, RN, PNP;
1School of Nursing, Oregon Health & Science University, Portland, Oregon
2Institute of Developmental Disability, Oregon Health & Science University, Portland, Oregon
Corresponding author: Jessica Y. Chaney, DNP, RN, PNP, School of Nursing, Oregon Health & Science University, Mail Code SN-5S (569), 3455 SW US Veterans Hospital Road, Portland, OR 97239; email: [email protected]
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Asma A. Taha, PhD, RN, CPNP-PC/AC;
Asma A. Taha, PhD, RN, CPNP-PC/AC
1School of Nursing, Oregon Health & Science University, Portland, Oregon
2Institute of Developmental Disability, Oregon Health & Science University, Portland, Oregon
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Joseph D. Pinter, MD, MBA
Joseph D. Pinter, MD, MBA
2Institute of Developmental Disability, Oregon Health & Science University, Portland, Oregon
3School of Medicine, Department of Pediatrics, Oregon Health & Science University, Portland, Oregon
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Top Spinal Cord Inj Rehabil (2022) 28 (3): 1–8.
Citation
Jessica Y. Chaney, Asma A. Taha, Joseph D. Pinter; Demystifying Spina Bifida Guidelines Using a Periodicity Schedule. Top Spinal Cord Inj Rehabil 1 June 2022; 28 (3): 1–8. doi: https://doi.org/10.46292/sci21-00097
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