Collaborative research with community members has been identified as “one of the best ways to support rapid application of research evidence” by focusing research to the needs of users. As funders and researchers rush to bridge the gap in healthcare delivery, there arises a need to build on integrated knowledge translation (IKT) best practices to support equitable PLEX compensation. This research will help determine the monetary value of PLEX when participating in research.
Describe the methods used to quantify lived experience compensation rates across the healthcare spectrum; including BCCDC, Diabetes Action Canada, CIHR Genetics, National Health Council, Chronic Pain Network etc.
Determine an equitable PLEX compensation rate based on current research;
Share research to help guide equitable compensation rates.
An environmental scan of healthcare funders, institutions and organizations patient partners /lived experience compensation rates in Canada, United States, and select countries from 2010-2023 provided a baseline data set. A systematic scan of published literature and grey literature of this nascent field, PLEX compensation rates was synthesized from this analysis and aligned with the SPOR guidelines. A third party conducted a check of the data abstraction to ensure high data quality.
Early results indicate a wide range of patient compensation rates from $40-200 a session with limited information on SCI-specific compensation.
This research provides a rationale for fair and equitable compensation of PLEX, with a compensation matrix based on the level of engagement.
