Within this article, key issues associated with the effective transition of young people with an acquired spinal cord injury (SCI) from paediatric to adult health services within the state of New South Wales (NSW), Australia, are explored. This is an overview of current practice, available literature, and challenges faced by the NSW Paediatric Spinal Outreach Service in implementing a successful transition model. A holistic and developmental approach to transition is proposed where transition planning starts from the point of injury. A series of tools to facilitate the education, health management, and goal setting of young people is presented.
Rosen DS, Blum RW, Britto M, Sawyer S. Transition care: helping young people move successfully from child to adult health services. Available at: http://www.health.nsw.gov.au/gmct/transition/index.asp. Accessed April 4, 2010. http://www.health.nsw.gov.au/gmct/transition/index.asp.
Blum RW, Garell D, Hodgman CH, et al. Transition from child-centered to adult healthcare systems for adolescents with chronic conditions. A position paper of the Society for Adolescent Medicine.J Adolesc Health. 1993;14(7):570–576.
,
Transition from child-centered to adult healthcare systems for adolescents with chronic conditions. A position paper of the Society for Adolescent Medicine
, J Adolesc Health.
, vol. 14
(pg. 570
-576
) Steinbeck KS, Brodie L, Towns SJ. Transition care for young people with chronic illness.Int J Adolesc Med Health. 2007;19(3):295–303.
,
Transition care for young people with chronic illness
, Int J Adolesc Med Health.
, vol. 19
(pg. 295
-303
) Epps A, Taylor TKF, Waugh MC. Paediatric spinal outreach services: the NSW experience.J Bone Joint Surg [Br]. 2004;(86-B Suppl):95.
,
Paediatric spinal outreach services: the NSW experience
, J Bone Joint Surg [Br].
Australian Physiotherapy Association. Transition position statement. Available at: http://www.health.nsw.gov.au/resources/gmct/transition/Position_statement_APA_pdf.asp. Accessed April 4, 2010. http://www.health.nsw.gov.au/resources/gmct/transition/Position_statement_APA_pdf.asp.
Henley G. Spinal cord injury 1999-2005. National Injury Surveillance Unit. Available at: http://www.aihw.gov.au/publications/inj/ injcat-124-10716/injcat-124-10716.pdf. Accessed April 5, 2010. http://www.aihw.gov.au/publications/inj/
Baker I.The Dr Dorothea Sandars Churchill Fellowship to investigate innovation in physiotherapy for children with acquired spinal cord injury. Sydney: The Winston Churchill Memorial Trust of Australia; 2010.
,
The Dr Dorothea Sandars Churchill Fellowship to investigate innovation in physiotherapy for children with acquired spinal cord injury.
Marshall R, Symmons T. Spinal cord injury service flying clinics - outreach to remote aboriginal communities in Northern Australia.Int J Med. 2010;1(40S):65.
,
Spinal cord injury service flying clinics - outreach to remote aboriginal communities in Northern Australia
, Int J Med.
, vol. 1
Gruen RL, Bailie RS, Wang Z, Heard S, O’Rourke IC. Specialist outreach to isolated and disadvantaged communities: a population-based study.Lancet. 2006;368(9530):130–138.
,
Specialist outreach to isolated and disadvantaged communities: a population-based study
, Lancet.
, vol. 368
(pg. 130
-138
) Gruen RL, Weeramanthri TS, Knight SSE, Bailie RS. Specialist outreach clinics in primary care and rural hospital settings.Cochrane Database Systematic Rev. 2009.
,
Specialist outreach clinics in primary care and rural hospital settings
, Cochrane Database Systematic Rev.
Middleton JW, McCormick M, Engel S, et al. Issues and challenges for development of a sustainable service model for people with spinal cord injury living in rural regions.Arch Phys Med Rehabil. 2008;89:1941–1947.
,
Issues and challenges for development of a sustainable service model for people with spinal cord injury living in rural regions
, Arch Phys Med Rehabil.
, vol. 89
(pg. 1941
-1947
) Brodie L, Kasengele P, Harris R, Smith L, O’Connor L.Transition Care for Young People with Chronic Childhood Illnesses: Framework. Sydney, Australia: Greater Metropolitan Clinical Taskforce; 2008.
,
Transition Care for Young People with Chronic Childhood Illnesses: Framework.
Shidlow DV, Fiel SB. Life beyond pediatrics: transition of chronically III adolescents from pediatric to adult care systems.Med Clin North Am. 1990;94:1113–1120.
,
Life beyond pediatrics: transition of chronically III adolescents from pediatric to adult care systems
, Med Clin North Am.
, vol. 94
(pg. 1113
-1120
) Piaget J.The Essential Piaget. New York: Basic Books; 1977.
,
Transition Care for Young People with Chronic Childhood Illnesses: Framework.
Bronfenbrenner U.The Ecology of Human Development: Experiments by Nature and Design. Cambridge, MA: Harvard University Press; 1979.
,
The Ecology of Human Development: Experiments by Nature and Design.
Vygotski LS. The problem of the cultural development of the child II.J Genetic Psychol. 1929;36:415–432.
,
The problem of the cultural development of the child II
, J Genetic Psychol.
, vol. 36
(pg. 415
-432
) Augutis M, Abel R, Levi R. Pediatric spinal cord injury in a subset of European countries.Spinal Cord. 2006;44(2):106–112.
,
Pediatric spinal cord injury in a subset of European countries
, Spinal Cord.
, vol. 44
(pg. 106
-112
) Taylor E. Providing developmentally based care for school-aged and adolescent patients.AORN J. 2009;90(2):261–267.
,
Providing developmentally based care for school-aged and adolescent patients
, AORN J.
, vol. 90
(pg. 261
-267
) Price B. Body image in adolescents: insights and implications.Paediatr Nurs. 2009;21(5):38–43.
,
Body image in adolescents: insights and implications
, Paediatr Nurs.
, vol. 21
(pg. 38
-43
) Rutledge DN, Dick G. Spinal cord injury in adolescence.Rehabil Nurs. 1983;8(6):18–21.
,
Spinal cord injury in adolescence
, Rehabil Nurs.
, vol. 8
(pg. 18
-21
) Stewart D, Stavness C, King G, Antle B, Law M. A critical appraisal of literature reviews about the transition to adulthood for youth with disabilities.Phys Occup Ther Pediatr. 2006;26(4):5–24.
,
A critical appraisal of literature reviews about the transition to adulthood for youth with disabilities
, Phys Occup Ther Pediatr.
, vol. 26
(pg. 5
-24
) Travis GE.Chronic Illness in Children: Its Impact on Child and Family. Stanford, CA: Stanford University Press; 1976
,
Chronic Illness in Children: Its Impact on Child and Family.
Dewis ME. Spinal cord injured adolescents and young adults: the meaning of body changes.J Adv Nurs. 1989;14(5):389–396.
,
Spinal cord injured adolescents and young adults: the meaning of body changes
, J Adv Nurs.
, vol. 14
(pg. 389
-396
) Mulcahey MJ. Returning to school after a spinal cord injury: perspectives from four adolescents.Am J Occup Ther. 1992;46(4):305–312.
,
Returning to school after a spinal cord injury: perspectives from four adolescents
, Am J Occup Ther.
, vol. 46
(pg. 305
-312
) Rosen D. Between two worlds: bridging the cultures of child health and adult medicine.J Adolesc Health. 1995;17(1):10–16.
,
Between two worlds: bridging the cultures of child health and adult medicine
, J Adolesc Health.
, vol. 17
(pg. 10
-16
) Baines JM. Promoting better care: transition from child to adult services.Nurs Standard. 2009;23(19):35–40.
,
Promoting better care: transition from child to adult services
, Nurs Standard.
, vol. 23
(pg. 35
-40
) Meyer EC, Snelling LK, Myren-Manbeck LK. Pediatric intensive care: the parents’ experience.AACN Clin Issues. 1998;9(1):64–74.
,
Pediatric intensive care: the parents’ experience
, AACN Clin Issues.
, vol. 9
(pg. 64
-74
) Farrell M. Parents of critically ill children have their needs too! A literature review.Intens Care Nurs. 1989;5(3):123–128.
,
Parents of critically ill children have their needs too! A literature review
, Intens Care Nurs.
, vol. 5
(pg. 123
-128
) Dean A.The Meaning Children and Their Parents Ascribe to Learning the Piano. Sydney: School of Occupation and Leisure Sciences, University of Sydney; 2001.
,
The Meaning Children and Their Parents Ascribe to Learning the Piano.
Viner R. Transition from paediatric to adult care. Bridging the gaps or passing the buck?Arch Dis Childhood. 1999;81(3):271–275.
,
Transition from paediatric to adult care. Bridging the gaps or passing the buck?
, Arch Dis Childhood.
, vol. 81
(pg. 271
-275
) Augutis M, Levi R, Asplund K, Berg-Kelly K. Psychosocial aspects of traumatic spinal cord injury with onset during adolescence: a qualitative study.J Spinal Cord Med. 2007;30: S55–64.
,
Psychosocial aspects of traumatic spinal cord injury with onset during adolescence: a qualitative study
, J Spinal Cord Med.
, vol. 30
(pg. S55
-64
) Stagnitti K. Occupational performance issues in pretend play: implications for paediatric practice. In: Molineux M, ed.Occupations for Occupational Therapists. Victoria, Australia: Blackwell Publishing; 2004:103–121.
,
Occupational performance issues in pretend play: implications for paediatric practice. In
, Occupations for Occupational Therapists.
(pg. 103
-121
) Cziksentmihalyi M.Flow – The Psychology of Optimal Experience. New York: HarperCollins Publishers; 1990.
,
Flow – The Psychology of Optimal Experience.
Ferguson JM, Trombly CA. The effect of added-purpose and meaningful occupation on motor learning.Am J Occup Ther. 1997;51(7):508–515.
,
The effect of added-purpose and meaningful occupation on motor learning
, Am J Occup Ther.
, vol. 51
(pg. 508
-515
) Bloorview Kids Rehab. Preparing for Adult Life: Growing Up Ready Framework. Available at: http://www.bloorview.ca/resourcecentre/familyresources/growingupready.php. Accessed April 4, 2010. http://www.bloorview.ca/resourcecentre/familyresources/growingupready.php.
Dosa N. Improving transition to adulthood for adolescents with Spina Bifida. Presented at: Howard H. Steel Conference: Pediatric Spinal Cord Injuries and Dysfunction; 2006; Lake Buena Vista, Florida.
Steinbeck KS, Brodie L, Towns SJ, Steinbeck KS, Brodie L, Towns SJ. Transition in chronic illness: Who is going where?J PaediatrChild Health. 2008;44(9):478–482.
,
Transition in chronic illness: Who is going where?
, J PaediatrChild Health.
, vol. 44
(pg. 478
-482
) Shilts MK, Horowitz M, Townsend MS. An innovative approach to goal setting for adolescents: guided goal setting.J Nutr Educ Behav. 2004;36(3):155.
,
An innovative approach to goal setting for adolescents: guided goal setting
, J Nutr Educ Behav.
, vol. 36
Anderson CJ, Vogel LC, Betz RR, Willis KM. Overview of adult outcomes in pediatric-onset spinal cord injuries: implications for transition to adulthood.J Spinal Cord Med. 2004;27: S98–106.
,
Overview of adult outcomes in pediatric-onset spinal cord injuries: implications for transition to adulthood
, J Spinal Cord Med.
, vol. 27
(pg. S98
-106
)
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