Background: Significant research has focused on psychological difficulties following spinal cord injury (SCI), and there is a small prevalence of individuals who experience distress after injury. However, the converse is that many adjust well to injury and rate their quality of life highly. Despite this, there has been a comparative dearth of research investigating positive psychological outcomes after SCI, perceived by individuals living with this disability. Objective: To explore individuals’ perceptions of gain following the experience of SCI. Methods: Participants, who had sustained an SCI between the ages 16 and 83, responded to an open-ended written question: “What do you think you have gained from the experience of spinal cord injury?” This was administered at 4 time points post injury: 6 weeks, 12 weeks, 1 year, and 2 years. Results: Participants’ responses were analyzed qualitatively using the framework of thematic analysis. Thirteen themes were identified: relationships, appreciation of relationships, perspective and appreciation of life, new goals or priorities, understanding of SCI or disability, appreciation of health or health care, changed personality, opportunity or challenge, knowledge of SCI or body, newly acquired skills, spirituality, acceptance, and nothing. Descriptive statistics were incorporated in the presentation of the data. Conclusions: This study provides evidence that a broad range of positive as well as negative psychological outcomes are possible following SCI. More research is needed to better understand the process through which these outcomes arise and to inform how such outcomes may be communicated to persons experiencing this type of injury.
Song HY, Nam KA. Coping strategies, physical function, and social adjustment in people with spinal cord injury. Rehabil Nurs. 2010;35:8–15.
,
Coping strategies, physical function, and social adjustment in people with spinal cord injury
, Rehabil Nurs.
, vol. 35
(pg. 8
-15
) Craig A, Tran Y, Middleton J. Psychological morbidity and spinal cord injury: A systematic review. Spinal Cord. 2009;47:108–114.
,
Psychological morbidity and spinal cord injury: A systematic review
, Spinal Cord.
, vol. 47
(pg. 108
-114
) Kennedy P, Lude P, Taylor N. Quality of life, social participation, appraisals and coping post spinal cord injury: A review of four community samples. Spinal Cord. 2006;44:95–105.
,
Quality of life, social participation, appraisals and coping post spinal cord injury: A review of four community samples
, Spinal Cord.
, vol. 44
(pg. 95
-105
) Whiteneck GG, Charlifue SW, Frankel HL, et al. Mortality, morbidity, and psychosocial outcomes of persons spinal cord injured more than 20 years ago. Paraplegia. 1992;30:617–630.
,
Mortality, morbidity, and psychosocial outcomes of persons spinal cord injured more than 20 years ago
, Paraplegia.
, vol. 30
(pg. 617
-630
) Folkman S, Lazarus RS. An analysis of coping in a middle-aged community sample. J Health Social Behav. 1980;21:219–239.
,
An analysis of coping in a middle-aged community sample
, J Health Social Behav.
, vol. 21
(pg. 219
-239
) Folkman S, Chesney M, McKusick L, Ironson G, Johnson DS, Coates TJ. Translating coping theory into an intervention. In: Eckenrode J, ed. The Social Context of Coping. New York: Plenum Press; 1991.
,
Translating coping theory into an intervention. In
, The Social Context of Coping.
Pollard C, Kennedy P. A longitudinal analysis of emotional impact, coping strategies and posttraumatic psychological growth following spinal cord injury: A 10-year review. Br J Health Psychol. 2007;12:347–362.
,
A longitudinal analysis of emotional impact, coping strategies and posttraumatic psychological growth following spinal cord injury: A 10-year review
, Br J Health Psychol.
, vol. 12
(pg. 347
-362
) Duff J, Kennedy P. Spinal cord injury. In: Llewelyn S, Kennedy P, eds. Handbook of Clinical Health Psychology. UK: Wiley; 2003.
,
Spinal cord injury. In
, Handbook of Clinical Health Psychology.
Tedeschi RG, Calhoun LG. Trauma and Transformation: Growing in the Aftermath of Suffering. Thousand Oaks, CA: Sage; 1995.
,
Trauma and Transformation: Growing in the Aftermath of Suffering.
Caplan G. Principles of Preventive Psychiatry. New York: Basic Books; 1964.
,
Principles of Preventive Psychiatry.
O’Leary V, Ickovics JR. Resilience and thriving in response to challenge: An opportunity for a paradigm shift in women’s health. Women’s Health. 1995;1:121–142.
,
Resilience and thriving in response to challenge: An opportunity for a paradigm shift in women’s health
, Women’s Health.
, vol. 1
(pg. 121
-142
) Tedeschi RG, Calhoun LG. The posstraumatic growth inventory: Measuring the positive legacy of trauma. J Traumatic Stress. 1996;9:455–471.
,
The posstraumatic growth inventory: Measuring the positive legacy of trauma
, J Traumatic Stress.
, vol. 9
(pg. 455
-471
) Hefferon K, Grealy M, Mutrie N. Post–traumatic growth and life threatening physical illness: A systematic review of the qualitative literature. Br J Health Psychol. 2009;14:343–378.
,
Post–traumatic growth and life threatening physical illness: A systematic review of the qualitative literature
, Br J Health Psychol.
, vol. 14
(pg. 343
-378
) McMillen JC, Cook CL. The positive by-products of spinal cord injury and their correlates. Rehabil Psychol. 2003;48:77–85.
,
The positive by-products of spinal cord injury and their correlates
, Rehabil Psychol.
, vol. 48
(pg. 77
-85
) Chun S, Lee Y. The experience of posttraumatic growth for people with spinal cord injury. Qual Health Res. 2008;18:877–890.
,
The experience of posttraumatic growth for people with spinal cord injury
, Qual Health Res.
, vol. 18
(pg. 877
-890
) Weitzner E, Surca S, Wiese S, Dion A, Roussos Z, Renwick R, Yoshida K. Getting on with life: Positive experiences of living with a spinal cord injury. Qual Health Res. 2011;21:1455–1468.
,
Getting on with life: Positive experiences of living with a spinal cord injury
, Qual Health Res.
, vol. 21
(pg. 1455
-1468
) Nolen–Hoeksema S, Davis CG. Positive responses to loss: Perceiving benefits and growth. In: Snyder R, Lopez S, eds. Handbook of Positive Psychology. Oxford University Press; 2002.
,
Positive responses to loss: Perceiving benefits and growth. In
, Handbook of Positive Psychology.
Carver CS, Pozo C, Harris SD, et al. How coping mediates the effect of optimism on distress: A study of women with early stage breast cancer. J Pers Social Psychol. 1993;65:375–390.
,
How coping mediates the effect of optimism on distress: A study of women with early stage breast cancer
, J Pers Social Psychol.
, vol. 65
(pg. 375
-390
) Lancastle D, Boivin J. A feasibility study of a brief coping intervention (PRCI) for the waiting period before a pregnancy test during fertility treatment. Human Reproduction. 2008;23:2299–2307.
,
A feasibility study of a brief coping intervention (PRCI) for the waiting period before a pregnancy test during fertility treatment
, Human Reproduction.
, vol. 23
(pg. 2299
-2307
) Pakenham KI. Benefit finding in multiple sclerosis and associations with positive and negative outcomes. Health Psychol. 2005;24:123–132.
,
Benefit finding in multiple sclerosis and associations with positive and negative outcomes
, Health Psychol.
, vol. 24
(pg. 123
-132
) Hammell KW. Exploring quality of life following high spinal cord injury: A review and critique. Spinal Cord. 2004;42:491–502.
,
Exploring quality of life following high spinal cord injury: A review and critique
, Spinal Cord.
, vol. 42
(pg. 491
-502
) Kennedy P, Lude P, Elfstrom M, Smithson E. Appraisals, coping and adjustment pre and post SCI rehabilitation: A 2-year follow-up study. Spinal Cord. 2012; 50:112–118.
,
Appraisals, coping and adjustment pre and post SCI rehabilitation: A 2-year follow-up study
, Spinal Cord.
, vol. 50
(pg. 112
-118
) Calhoun LG, Tedeschi RG. Positive aspects of critical life problems: Recollections of grief. Omega. 1989-90;20:265–272.
,
Positive aspects of critical life problems: Recollections of grief
, Omega.
, vol. 20
(pg. 265
-272
) Rogers B, Kennedy, P. A qualitative analysis of reported coping in a community sample of people with spinal cord injuries: The first year post discharge. SCI Psychosoc Process. 2000;13(2):43–50
,
A qualitative analysis of reported coping in a community sample of people with spinal cord injuries: The first year post discharge
, SCI Psychosoc Process.
, vol. 13
(pg. 43
-50
) Gerhart KA. Quality of life: The danger of differing perceptions. Top Spinal Cord Inj Rehabil. 1997;2:78– 84.
,
Quality of life: The danger of differing perceptions
, Top Spinal Cord Inj Rehabil.
, vol. 2
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